At 4 weeks old, Keely Skinner almost lost her life. Keely was rushed to the hospital with high fever and seizures. She had come down with a deadly form of Meningitis (severe infection located in the fluid around the brain) which then progressed into Encephalitis (which is a severe infection located directly on the brain). Keely continues to suffer from developmental delays, tremors and from a chronic seizure disorder, having multiple seizures every day. At two years old, Keely has severe physical limitations, she is still at the stage of a newborn 0-3 months. Through all life’s challenges, Keely remains to be the happiest, most loving child; inspiring and touching the lives of everyone she meets.
TINY KIDD....................BORN AGAIN

Tiny Kidd Hero

"Tiny Kidd," is a True Hero and a Blessing from God.



*Click on her name when you are done watching a video to see more videos of Keely on YouTube.

Friday, July 1, 2011

GREAT NEWS FROM TEXAS!!!!!!!!

It's official, I got the call this morning, we got some of the greatest news we've gotten in a long time.  Through the entire 48-hour Video EEG, Tiny Kidd only had.....wait for it..........TWO seizures!!!!!!!!!!!!!!!!!!  I literally jumped for joy & danced with Tiny Kidd!  The doctor was extremely happy and said that's like a 95% improvement from when she was there last year!!!!!!!!!!! When we were there last year, they observed Tiny Kidd and showed that she had close to 60 seizures in just a few days with 37 of those in one day and they were much longer than they are now!!!!  This means that the medicine she is on is actually doing more good than any other she's ever tried!  This just confirms what we were hoping; we noticed an extreme difference since she was switched to this med and has progressed tremendously. 

There has been days where she has a few more seizures & we discussed that with the doctor.  My concern was that if her daily dose of miralax is even just slightly off, it flushes her medicine right through her before it has a chance to absorb in her body.  He suggested we change the time when we give her the miralax & I'm considering buying a scale to make sure she gets exactly the same dose everyday.  This is extremely important if we want to keep her seizures away.  The doctor said if this works, she may actually get more of the medicine in her system, if she starts to be affected in a bad way we may actually be able to decrease the dose(because she's at the max dosage with a high level in her body).  As she grows and her seizures start to come out more the doctor will then just add another seizure medicine on top of the current one. 

We are super excited, it was a great trip with a very uplifting outcome.  Nick and I want to thank everyone who has been in prayer for Tiny Kidd and ask that you continue to keep the prayers coming!



Tiny Kidd's first experience at Build-A-Bear....SO FUN!!!


Giving her new baby a bath






The drive home....need I say more....





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