At 4 weeks old, Keely Skinner almost lost her life. Keely was rushed to the hospital with high fever and seizures. She had come down with a deadly form of Meningitis (severe infection located in the fluid around the brain) which then progressed into Encephalitis (which is a severe infection located directly on the brain). Keely continues to suffer from developmental delays, tremors and from a chronic seizure disorder, having multiple seizures every day. At two years old, Keely has severe physical limitations, she is still at the stage of a newborn 0-3 months. Through all life’s challenges, Keely remains to be the happiest, most loving child; inspiring and touching the lives of everyone she meets.
TINY KIDD....................BORN AGAIN

Tiny Kidd Hero

"Tiny Kidd," is a True Hero and a Blessing from God.



*Click on her name when you are done watching a video to see more videos of Keely on YouTube.

Monday, January 10, 2011

Goodbye 2010....Hello 2011!

I don't know about you guys, but 2010 felt like it flew by faster than ever.  Every time we turn around another week has disappeared and so we begin another year.... 

Tiny Kidd is growing beautifully! Therapy is going well.  Along with her tube feedings, we are continuing to do therapeutic feeds (which are: feeding her a few, small bites of food by mouth to try to train her how to eat, swallow,  etc.).  Her seizures, well.....still a work in progress.  They've been increasing in number and in strength lately, so her neurologist in Texas has scheduled her for another inpatient video EEG for in February.  Tomorrow she has an appointment with Dr. Wright (referred by her okc neurologist), to help with the stiffness in her joints and braces for legs & hands.  And supposedly, her wheelchair has finally been ordered!  This has been a 10 month long journey from the time we started demoing chairs; we had so many stinkin' hoops to jump through because of insurance...it was ridiculous!  We are trying not to get our hopes up about it coming soon (cause each time we did, something happened to delay the process)....but secretly we are cheering & jumping for joy! 

In closing up another year, we praise God for his one and only son Jesus Christ, for blessing us with precious Tiny Kidd and so many wonderful family and friends, and remembering loved ones we've lost .  So from the Skinner family, we hope everyone had a very Merry Christmas, and we pray wonderful blessings for everyone in 2011!!!

                                               Our Shining Star

                             Aint They the Cutest things you ever seen!

                                                 Christmas 2010







 

 

The New Style Trend for 2011

In Loving Memory of April Gower
Feb 4, 1978 - April 3, 2010
Aunt April & her 'Apple Bits' 2008 (Keely- 1/2 day old)
We will Forever miss our April.....May you be at peace in the arms of Jesus


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