Last week Keely had an appointment with her neurologist, here in the city, and we learned what her actual diagnosis is. Keely has Cerebral Palsy and evidently has been diagnosed from the very beginning (2yrs ago) with that. I don't know if it was a lack of communication or misunderstanding on my part but now we have been confirmed. This was something I had discussed with her therapists in the past as I was learning more about the disability. I didn't realize Cerebral Palsy was an overall umbrella term, referring to an injury to the brain at birth or shortly there after causing a lack of progression. There are several ways a baby can have a brain injury and that ends up falling under the one term, CP. After doing more research on CP, I realized that I was highly uneducated about it because everything that I read was everything that Keely has. If I had known what CP really was, I would've known that she had it all along. Needless to say, I felt a little dense when her neurologist said she's had it the whole time and she puts it in her chart every time she sees Keely.....
On the other side, her neurologist in Texas increased her seizure medicines again after seeing her blood work. The two doctors were going to touch base and discuss next steps in the whole seizure dilemma.
So all in all, Tiny Kidd is doing well (except for sleeping a little more since the med increase), her neurologist was very impressed she was using sign language to potty train herself and she even got to hear her attempt at saying 'I Love You.' The doctor is going to refer Keely to Dr. Wright (I don't remember what type of doctor he is, it's a strange name) for things like the tightness she has in her joints and if she needs braces for her legs. I have heard wonderful things about Dr. Wright from all of her therapists and her other doctors so that makes us feel better that they say he is a wonderful man.
Sorry no pics this time, I will try to get some posted soon.
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