At 4 weeks old, Keely Skinner almost lost her life. Keely was rushed to the hospital with high fever and seizures. She had come down with a deadly form of Meningitis (severe infection located in the fluid around the brain) which then progressed into Encephalitis (which is a severe infection located directly on the brain). Keely continues to suffer from developmental delays, tremors and from a chronic seizure disorder, having multiple seizures every day. At two years old, Keely has severe physical limitations, she is still at the stage of a newborn 0-3 months. Through all life’s challenges, Keely remains to be the happiest, most loving child; inspiring and touching the lives of everyone she meets.
TINY KIDD....................BORN AGAIN

Tiny Kidd Hero

"Tiny Kidd," is a True Hero and a Blessing from God.



*Click on her name when you are done watching a video to see more videos of Keely on YouTube.

Monday, November 22, 2010

Warm November Weather

The joys of living in Oklahoma...you never know what the weather will be like.  We had several days of cold weather and then suddenly, the past few days have been in the 70's....just beautiful!  So yesterday we took advantage of it and spent some family time outside.  Keely got to enjoy some great play time in her stander watching us hang Christmas lights.  We were so proud of her, she hit an all-time high in her stander, managing to stay in it for over 2 hours!!!  (This is huge considering it was always a struggle to keep her in it for 20 min).  She was just enjoying herself being outside, playing, watching mommy & daddy be goofy, and visiting with the several neighbors that stopped by.  We decided this year we wanted to be more in the holiday spirit since last year Tiny Kidd was in the hospital over Thanksgiving from her G-tube surgery and then in the ER over Christmas, and she was so drugged from all the seizure medications she was on she couldn't enjoy much of anything. So, last year, the whole season was just full of stress; this year will be different, she is more alert and able to enjoy life a little better.  So we started by hanging a few more Christmas lights this year thinking Tiny Kidd would enjoy them....And She DID!  Her face LIT up and she got so excited when she saw the lights!  It made us feel so good because she is enjoying something normal kids enjoy and she's able to show her enthusiasm like a normal child. 

The good weather continued so we decided to have therapy outside this morning.  She got some more time in the stander and got to play with Lindsey (Occupational Therapist) and Jill (Speech/Language Pathologist) using a communication device that allows Keely to understand and make choices.  She got to explore her environment while she played games, using the buttons on the device to tell the girls specific commands.  On a side note, I have been teaching her more sign language and last week she picked up a couple more signs that she tried to mimic back to me, even using the 'All Done,' sign in relevant situations!!!!  Tiny Kidd is sooo smart and she is trying sooo hard to show us!! Good Job Tiny Kidd!!

                         Being an Excellent Christmas Light Supervisor



                      What do you think Mom....Should we keep him??

                                 
                               Darn Cute Daddy!!  Two Thumbs Up!!

             Bad picture....Still a work in progress but you get the gist
 

THERAPY


                                             Playing in the Leaves






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