For those of you who don't know, we have had to travel down to Texas for more testing. Keely was admitted to the Epilepsy Monitoring Unit at Cook Children's Hospital for a 48-hour video EEG(something they do not have in Oklahoma). This is to see exactly what her seizures are doing and to determine the next step. They attach a whole bunch of leeds to her head that monitor her brain waves and watch her on a video camera stationed in the room, where we then get a button that we press each time we think she's having a seizure. It's nice being able to have the doctor see what we see throughout a 24-hr period and answer any questions we might have or show us things we were not aware of. Last year, we were here for the first time for a full week of all sorts of tests and were able to learn so much more about our Tiny Kidd and what is happening with her. The EM Unit has been such a blessing an experience with great technology, specialists, great facility and a wonderful team of doctors.
Yesterday we spent half the day going over medical info & getting all of her MANY leeds attached to her head. So far things are going well, aside from Tiny Kidd not getting much sleep last night, she is having a great time. This trip has been a lot more tame than the one we made last year, and we praise Jesus for that!!
We have the first 24-hrs done and are working on the next, I will keep you posted on her progress.
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| There is ABSOLUTELY NO other way to wear your hair! |
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| And...just like that..she was out (they thought something had happened to her..) |
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| The light test...she had fun playing with it... |
Tiny Kidd....Getting Daddy ready to go to the hospital..
