At 4 weeks old, Keely Skinner almost lost her life. Keely was rushed to the hospital with high fever and seizures. She had come down with a deadly form of Meningitis (severe infection located in the fluid around the brain) which then progressed into Encephalitis (which is a severe infection located directly on the brain). Keely continues to suffer from developmental delays, tremors and from a chronic seizure disorder, having multiple seizures every day. At two years old, Keely has severe physical limitations, she is still at the stage of a newborn 0-3 months. Through all life’s challenges, Keely remains to be the happiest, most loving child; inspiring and touching the lives of everyone she meets.
TINY KIDD....................BORN AGAIN

Tiny Kidd Hero

"Tiny Kidd," is a True Hero and a Blessing from God.



*Click on her name when you are done watching a video to see more videos of Keely on YouTube.

Saturday, May 28, 2011

Improvements, More Braces, Therapy, & School

Hello All!  Keely is doing well! She is awaiting her second round of botox injections, we had to reschedule it this week because she started coming down with something so she is set up for this next week instead. The doctor wasn't pleased with the result of the first round so he plans on increasing the dose this next time for a better outcome, he also added another brace to the brace she's already wearing at night so she keeps her leg straight but they will also be used on both legs during the day to stretch out her hamstrings.  She has also acquired some Ankle Foot Orthotics (AFO's) to keep her feet & ankles positioned properly.  She passed her hearing test with flying colors, they don't want to see her back for a whole year...YEA!!  We visited the school she will be attending once she is done with Sooner Start.  We got to meet the teachers and a lot of the therapists and we just Loved everyone!  It was very comforting to see the passion they have for these special kids; and while we were there Tiny Kidd got to meet a few new friends as well.  She just continues to do well in therapy, her head control and trunk control keep getting better.  Her therapeutic feeds have drastically changed, she is actually wanting to eat when we eat, she is able to sit up right & open & close her mouth around the spoon & she is actually swallowing her food instead of letting it fall out of her mouth!!!! We are that much closer to getting that stinkin' tube out of her stomach, YEA!!!  She's gotten so good at using her right hand that I think it has helped her in expressing what she wants to do.  Not only does she continue to learn more sign language but she also expresses when she wants something, is done with something or wants to play games with others.  She has become very expressive in what SHE wants, and for that we are super excited.  I can only imagine what a struggle it must be to be trapped in a body that won't do what you want it to do, and how exciting it must be when you finally break through and find ways to be independent & communicate.


A very sleepy Keely on Easter



Daddy likes to throw diapers at her so she will make THIS FACE....
Awaiting Round 1 of botox injections

Yup.....not comfortable....
Tiny Kidd picked out her own outfit to visit school
 
New Friends

AFO's

Occupational Therapy

Physical Therapy



Speech & Occupational Therapy at Home

Pretending to feed her babies....isn't this precious!

Therapy with an I-Pad

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