Cerebral Palsy

Last week Keely had an appointment with her neurologist, here in the city, and we learned what her actual diagnosis is.  Keely has Cerebral Palsy and evidently has been diagnosed from the very beginning (2yrs ago) with that.  I don't know if it was a lack of communication or misunderstanding on my part but now we have been confirmed.  This was something I had discussed with her therapists in the past as I was learning more about  the disability.  I didn't realize Cerebral Palsy was an overall umbrella term, referring to an injury to the brain at birth or shortly there after causing a lack of progression.  There are several ways a baby can have a brain injury and that ends up falling under the one term, CP.  After doing more research on CP, I realized that I was highly uneducated about it because everything that I read was everything that Keely has.  If I had known what CP really was, I would've known that she had it all along.  Needless to say, I felt a little dense when her neurologist said she's had it the whole time and she puts it in her chart every time she sees Keely.....

On the other side, her neurologist in Texas increased her seizure medicines again after seeing her blood work.  The two doctors were going to touch base and discuss next steps in the whole seizure dilemma. 

So all in all, Tiny Kidd is doing well (except for sleeping a little more since the med increase), her neurologist was very impressed she was using sign language to potty train herself and she even got to hear her attempt at saying 'I Love You.'  The doctor is going to refer Keely to Dr. Wright (I don't remember what type of doctor he is, it's a strange name) for things like the tightness she has in her joints and if she needs braces for her legs.  I have heard wonderful things about Dr. Wright from all of her therapists and her other doctors so that makes us feel better that they say he is a wonderful man. 

Sorry no pics this time, I will try to get some posted soon. 

Med Changes, Peek-a-Boo, 'I Love You,' & Friends

The past couple of weeks have been pretty busy with therapy, the holidays, and family visiting and Keely continues to learn new and exciting things.  Keely still continues to have several seizures a day and her Neurologist in Texas just increased her medicine about a week ago. So far not much change on that, the doctor wants to do bloodwork again and check to see where her levels are at.  Tomorrow, after therapy, she goes to see her Neurologist here in the city, so I will keep you posted on both of those things. 

Keely has recently discovered how to play 'Peek-A-Boo!'  We are so excited; she managed to grab a hold of her towel, raised it up to her face covering her eyes, wait a few seconds and then lower it from her face, we say 'Peek-a-boo' and she gets so excited then covers her eyes again!  She's playing it all the time, I tried to get video but she got sidetracked so I will try again.

Tiny Kidd has become very vocal and at times it's like she tries to carry on a conversation with you.  We say 'I Love You,' to her about 5000 times a day and she has been trying her hardest to say it back!!  She does 3 distinct sounds and has gotten so close to trying to form the 'L' sound!  We do have video of this below.  We are soooo proud of our Tiny Kidd!

We had a great time Saturday night watching the big football game with friends.  Tiny Kidd loves football but I think she had an especially great time when all the boys would jump up and scream,  she would crack up and laugh so hard at them,  it was awesome!

                                           Hangin' out with Friends

Paps & Meemaw!!

Well Keely got to play with her Paps and Meemaw this past week.  They came down for a few days from St. Louis, MO to visit us.  We were so excited to see them, we haven't seen them in two years and they were shocked to see how big Tiny Kidd was (and how much hair she has..;).  We had a blast enjoying their company and hated to see them leave, the trip definitely wasn't long enough.  Can't wait to see them again! 

                                                Meemaw & Keely

                                   Paps hard at work on his vacation

                                                    So Sweet....

                                                   WEEEEEE!!!!

                                 Daddy & Paps admiring their light job

                                 Eating yummy chicken at Eischens

                                 The Chesapeake Christmas Lights

                        This reminds me of the Disneyland Electrical Parade